Kaposi Sarcoma: Care Instructions

Overview

Kaposi sarcoma is a cancer that affects the skin, nose, throat, and the lining of the mouth. It may also affect other body tissues, including lymph nodes, lungs, and gastrointestinal tract. It often appears as purple spots or bumps on the skin.

Kaposi sarcoma occurs mainly in people who have a weak natural defense (immune) system, such as people who have AIDS.

Antiretroviral therapy (ART) to treat HIV usually works well to treat Kaposi sarcoma, too. If ART doesn't work well, or if Kaposi sarcoma is more advanced, your doctor may treat you with chemotherapy, radiation, or other medicines.

Follow-up care is a key part of your treatment and safety. Be sure to make and go to all appointments, and call your doctor if you are having problems. It's also a good idea to know your test results and keep a list of the medicines you take.

How can you care for yourself at home?

• Take your medicines exactly as prescribed. Call your doctor if you think you are having a problem with your medicine.

• Eat healthy foods. If you don't feel like eating, try to eat food that has protein and extra calories to keep up your strength and prevent weight loss. Drink liquid meal replacements for extra calories and protein. Try to eat your main meal early.

• If you have swelling of your arm or leg, try the following if your doctor says it's okay:

  • Prop up the arm or leg on a pillow anytime you sit or lie down. Try to keep it above the level of your heart.

  • Wear compression stockings or bandages on the swollen leg or arm.

  • Get exercise to keep fluid moving.

  • Try massage to help reduce fluid buildup.

• Take steps to control your stress. Try some relaxation techniques. If you need more support, ask your doctor to connect you with a counselor.

When should you call for help?

Call your doctor now or seek immediate medical care if:

Watch closely for changes in your health, and be sure to contact your doctor if:

Current as of: October 25, 2023

Content Version: 14.0

Care instructions adapted under license by your healthcare professional. If you have questions about a medical condition or this instruction, always ask your healthcare professional. Healthwise, Incorporated disclaims any warranty or liability for your use of this information.